THIS is MONUMENTAL! Kai took a bath today without screaming and crying in pain! I am so proud of her! She was able to take a nice soak comfortably for about 3-5 minutes. After that her skin started burning a little so we ended it.
Before tonight, this has not happened in over a year. The reason she was able to do it tonight is because her skin is improving. She is itching less, therefore scratching less, therefore no open tears, therefore no burning! She did get a little itchy and started burning right before she got out and afterwards for about 10 minutes. Then it subsided. This is still an improvement and we are so thankful! I gave her lots of encouragement and told her that she is a brave young girl to keep trying to take baths even though they are painful. Her perseverance is paying off. The strict eating, supplements, prayer...all of it, is paying off.
Thank you, God, for getting us this far. I can't believe this is happening!
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